Both the House and Senate have recently addressed an issue
that hasn’t popped up much on business radar—genetic discrimination. Despite
congressional activity, genetic discrimination suits rarely turn up in
courtrooms.
The minimum wage bill and a major measure on union formation
have taken the workplace spotlight during the first weeks of Congress. But
recently both the House and Senate have addressed an issue that hasn’t popped up
much on business radar—genetic discrimination.
On January 30, the House held a hearing on a bill that would
ban companies from using genetic information to make employment decisions. It
also would prohibit insurers from denying coverage or raising premiums based on
a genetic predisposition.
The Senate Health, Education, Labor and Pensions Committee
approved a similar measure on January 31. In previous Congresses, the full
Senate passed genetic nondiscrimination bills unanimously. House Republicans
resisted doing the same.
The calculus may change now that Democrats control the House,
where the current bill has received a hearing and garnered more than 180
bipartisan co-sponsors.
Despite the flurry of congressional activity, genetic
discrimination suits have rarely turned up in courtrooms. No cases have been
filed in the 32 states that have such laws.
In the sole federal action, Burlington Northern Santa Fe
Railroad reached a $2.2 million settlement with the Equal Employment Opportunity
Commission in 2002 in a case involving employees who were subject to genetic
tests for carpal tunnel syndrome.
The legal quiescence stems from the fact that companies
haven’t adopted genetic profiling in the employment process.
“This is an instance where the law is a bit out in front of
the practice in corporate America,” says Gerald L. Maatman Jr., an attorney
with Seyfarth Shaw in Chicago.
Legislators are trying to assuage employee fears about
genetic discrimination. They cite anecdotal evidence of workers who have been
fired after undergoing tests that purportedly revealed a predisposition toward a
disease, or workers who have refused to take tests because they don’t trust what
their employers will do with the results.
Fear of workplace abuse could hamper legitimate genetic
research, Rep. Louise Slaughter, D-New York and co-author of the House bill,
said at the House hearing.
“If individuals do not participate in clinical trials, then
we will never be able to reap the real benefits of genetic technology,” she
said.
Rep. Judy Biggert, R-Illinois and the measure’s other
co-author, stressed that the bill has been made less menacing to business
because it requires plaintiffs to exhaust administrative procedures before
turning to the courts. It also narrows the definition of genetic information and
caps punitive and compen- satory damages at $300,000 for companies with more
than 500 employees.
“An employer would have to go out of his or her way to
discriminate,” she says.
IBM already bans genetic testing. “In our view, not
protecting IBMers’ genetic privacy or not including genetics in our equal
opportunity policy would have been inconsistent with our own DNA as an
organization,” Harriet Pearson, IBM vice president for corporate affairs, said
at the House hearing.
But business interests worry that the legislation is too
broad—and ultimately unnecessary, given that it would overlay existing
antidiscrimination laws.
“The bill is a remedy in search of a problem,” Burton
Fishman, an attorney with Fortney Scott in Washington, said at the
hearing.
—Mark
Scheoff Jr.