President Bush signed the Genetic Information Nondiscrimination Act into law
Wednesday, May 21.
The new law prohibits employers from firing, refusing to hire or otherwise
discriminating against workers on the basis of genetic information. It also bans
health insurers or group health plans from basing eligibility determinations or
adjusting premiums or contributions on the basis of genetic information, and it
forbids the disclosure of genetic information.
The new law “protects our citizens from having genetic information misused,
and this bill does so without undermining the basic premise of the insurance
industry,” President Bush said in a statement released by the White House
shortly after he signed the bill.
The president of America’s Health Insurance Plans issued a statement praising
the action.
“With this landmark bipartisan legislation, Congress and the president have
taken strong action to prohibit discrimination based on a person’s genetic
makeup and to protect patients’ privacy as they pursue genetic evaluations,”
said AHIP president Karen Ignagni. “This legislation also ensures that patients
can continue to benefit from health plans’ innovative early detection and care
coordination programs that improve the safety and quality of care.”
A longtime proponent of the law said its enactment would promote better
disease management.
“Individuals no longer have to worry about being discriminated against on the
basis of their genetic information, and with this assurance, the promise of
genetic testing and disease management and prevention can be realized more
fully,” Sharon Terry, president of the Coalition for Genetic Fairness, said in a
statement.
The legislation prohibiting genetic discrimination has been in the works for nearly a decade.
Filed by Mark A. Hofmann of Business Insurance,
a sister publication of Workforce
Management. To comment, e-mail editors@workforce.com.