A coalition of employers, health insurers and health care providers released
a set of policy and technical guidelines June 25 they say will
make storing personal health records online easier and more secure.
The group, which includes Dossia, the employer group started by Intel,
Wal-Mart, Pitney Bowes, BP and Applied Materials, hopes the guidelines will help
gain the trust of consumers and employees concerned that online health records
would be vulnerable to theft or misuse by an employer or health insurer.
Participants that included employers and health insurers as well as companies
that have developed health care tools for consumers such as WebMD, Microsoft and
Google, endorsed a commitment to never use the information in a personal health
record to discriminate against an individual who is seeking health insurance or
employment. The coalition said it would create policies and controls so that
information in a health record cannot be obtained by employers and health
insurers without the consent of the individual.
Zoe Baird, president of the Markle Foundation, which organized the effort,
said “the information is not to be used for discriminatory purposes. Aetna and
others have signed onto this.”
Companies that offer personal health records should, according to the written
framework released June 25, “take a strong public and legal stand against
third parties seeking to make their own access to consumer data streams and
networked PHR information a condition of an individual’s employment, benefits,
or other services important to the well-being of individuals.”
Colin Evans, president of the employer group Dossia, said the framework
aligned with the understanding among the group’s employer-members that companies
will not have access to the personal health records of employees. Dossia has
said that employers will not have access to data from the personal health
records even if they want to use it anonymously to develop targeted wellness
programs.
“Our success depends on our employees to trust the system,” Evans said during
a conference call announcing the agreement.
James X. Dempsey, vice president for public policy of the Center for
Democracy and Technology, said the policy proposals go further than current
laws, like HIPAA, to protect patient privacy.
Steven Findlay, a health care analyst for Consumers Union, the publisher of Consumer
Reports, said the framework showed an extraordinary amount of cooperation
between different, sometimes competing, interests.
—Jeremy Smerd